Hi everyone,
I'm so sorry for the delay in giving an update. Evelyn and I came
home from the hospital Thursday afternoon. After many tests and
procedures here's the summary. Evelyn had a UTI which was probably
causing her body to struggle with her already low hematocrit and
platelet levels.
The vomiting was probably because she was getting too
much food at night and the blood in it was probably from her body's
inability to heal her delicate stomach effectively. As much as I hate
being in the hospital (which is only half as much as Evelyn hates it),
we are so relieved we stayed. Again, I credit our great and caring God
for helping the doctors put symptoms together. The visit was, in the
words of her nephrologist, a tune-up. She had a blood transfusion, which
immediately perked her up. We also adjusted her existing medications
and finally added some long anticipated ones--blood pressure medication,
red blood cell hormone shots, growth hormone, and acid suppressant. The
most difficult part of the visit was realizing this was not the last
and that many of the medications she's starting at two years old (blood
pressure and growth hormone) are either for life, after transplant, or
until the end of puberty. On the other hand, the best part of the visit
was watching Evelyn get sillier and happier as she felt better. I'm now
very motivated to get Evelyn potty trained (I can't take holding her
down for another catheter). My shingles are feeling much better. I'm
guessing they will disappear within a week and there is no sign of Ada
coming in contact.
We are again so grateful to everyone for meals, childcare, prayer,
and notes of encouragement. We are indebted to you all for caring for us
on His behalf.
Love from all of us,
Julianne
