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Sunday, November 25, 2012

What's for breakfast? Because it's going to be a great day!


Morning meds, blood pressure and temperature monitoring
What's for breakfast? Eggo waffles, hand sanitizer, medicine, and sweet family time. Since we are homebound we have fallen into habits, both bad and good. Keith walks three or four times per day and usually takes Marilouise with him. The doctor told him exercise was the key to a quick recovery.We're still spinning plates so Eggo waffles seem to be the easiest and most popular choice in our house lately (no judging).
Anyway, we are doing remarkably well. Keith and I are both tired but we are amazed at how smooth this portion of our journey has been. We credit God's grace, prayers of our family and friends (and strangers, for that matter), and all the support people continue to show us. Evelyn is bouncing around playing with her sisters. Her meds still have unpleasant side affects but they are fairly minor and we are working on solutions. Keith is doing well unless he tries to pick up one of our children. It is a constant temptation to be the helpful husband and father he always has been when he should be taking it easy. We have one more week of 3x a week labs (Sunday, Wednesday, and Friday) and 2x a week clinic (Monday and Friday). The week after we have labs 2x per week and only one clinic appointment! And we haven't had signs of an infection or rejection! Her blood pressure was 166/110 when we started dialysis. Her blood pressure is now regularly 95/58. It is incredible! Daddy's creatinine is .9 and Evelyn's is .4! She isn't eating and drinking significantly more yet but we see small signs of gradual improvement. We used to have to coax and cajole her to drink more fluid (she has a daily goal of 2.5 liters). Yesterday, she drank an entire milk box and a juice box on her own! She's often saying, "No more tubies!" by which she means no IVs or HD catheters or Foleys. We have stopped giving her growth hormone shots for a year (we'll reevaluate her growth but may not have to restart). Her scar is long (10-12 inches) but thin. She won't be able to hide it from her husband but the only thing holding her back from a bikini is her parents. Long and the short? Keep praying but give thanks. He has been faithful and we are already seeing signs of a new normal. Love to all.
Birthday and homecoming celebration

Dr Dick and the thriving patient.



Sisterly love over a puzzle

1 comment:

  1. So glad to hear that things are going smoothly (I'm sure that's a relative term). We've been thinking of you guys lots.

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