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Saturday, September 1, 2012

Transplant timeline (aka what we are in for)

Some of you have asked what our life is going to look like in the next year. I've given a brief timeline below, as we understand it.

Transplant: Keith is in the hospital for 3 - 4 days and then recovering for a couple weeks. He can't work physically for 2 - 3 months so we are relying entirely on our employees.
Evelyn will be in ICU for 3-4 days and then in the hospital for approx 2 weeks.
1 month post-transplant: we are at Children's for labs and check ups 3 - 5 times per week. It is usually a half day every time we go to the hospital so we will be almost living at the hospital and sleeping at home. At any time during this period we could be readmitted to the hospital if her labs don't look good so we could stay at the hospital many times. They say with younger patients it is likely we will have to stay at the hospital frequently.
2 - 3 months post-transplant: our visits to Children's for labs and check ups go down to 2-3 times per week. we could still be readmitted but hopefully it will be less.
4 - 6 months post-transplant: usually recipients begin to stabilize by this point. we are at Children's for labs and check ups only once per month.

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